WearyBonnie
3TomatoesShort@disabled.social
<p>Chronically ill with <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="tag">#<span>POTS</span></a>, living on unceded Whadjuk Noongar land - Boorloo/Perth, Western Australia. </p><p>Please don't give me unsolicited advice. If you desperately think your information may be useful, just ask first? </p><p>Quietly obsessed with the musical Tanz der Vampire. Occasional cross stitcher. Not complicit in the spread of preventable disease.</p><p>~* Transphobic 'feminism' is garbage *~</p><p>Economies are supposed to serve people, people are not supposed to serve economies ๐ค</p>
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#3GoodThings today. 1. A treasured thing was lost, and while we haven't yet found it, I did get a LOT of tidying/putting away/binning done while we were hunting for it ๐ 2. The soothing warmth and vibration of my massage mat ๐ซจ 3. Made some more good progress with my Christmas shopping ๐
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Dear Dog I am sick of people telling me what I should do. I know perfectly well what I should do; I am not well enough to do it.
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#3GoodThings today. 1. Very grateful to get a same day ear wax cleaning appointment for my eldest ๐๐ป 2. Youngest feral child deigned to bathe ๐ 3. Made a bit of progress with my Christmas shopping ๐
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Wtf do websites for holiday accommodation all insist on you choosing dates before letting you see their accommodation? I can't be the only person in the world who has no dates in mind, who just wants to find some suitable accommodation and _maybe_ think about dates after that?? Give me an option to see everything you have, without me having to pull random dates out of my butt! ๐
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I didn't do #3GoodThings already did I? 1. The very precious and treasured Dawg (squishy toy) which was discovered missing at bedtime turned up after an exhaustive search ๐ถ 2. Clean floors in most of the house ๐งน 3. Feeling less despairing than usual ๐คท๐ป
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#3GoodThings today. 1. I have all the paperwork ready, tomorrow I can email kiddo's new school and formally accept a position next year ๐ฅณ 2. I had a coffee today and the pain which I thought might have been triggered by coffee before hasn't returned yet. Maybe I won't have to give up coffee! โ 3. There were so many little flying insects and various birds fluttering through my garden today ๐ชฐ
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Finally!! After many walks in the hopes of seeing bandicoots (which are increasingly common in my parents' neighbourhood), my boys have seen one :)
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#3GoodThings today. 1. Enjoying the flowers and foliage in my garden ๐ผ 2. Had some good ideas for Christmas presents for my kiddos ๐ 3. Read through the paperwork from kiddo's new school; super excited for him to switch next year ๐
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#3GoodThings today. 1. My worm farm is looking very happy, and also full of worm eggs ๐ชฑ 2. I found a comfy, convenient, POTS-friendly way to stretch some of my constantly-tense muscles ๐ง๐ป 3. My kiddo got a place at the very small autistic-kids-only school we applied for ๐ฅณ
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Eldest got a place in the specialist school ๐ฅณ
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#3GoodThings today. 1. My verge garden looks very nice and brings me much joy, in its temporary less-weedy state ๐ก 2. Some Christmas decorations I ordered arrived, and they also bring me joy ๐ฆ 3. Got one step closer to being ready to adopt rats (commissioned a part for the cage) ๐
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Boorloo/Perth folks, have any of you had dealings with the Autism Association of WA? Any strong feelings for or against as a potential service provider for my kiddo?
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Yay!! I was doing some weeding out the front and discovered that the successful grevillea hasn't completely crowded out the little morning iris plant: it's still there, and actually looking quite substantial! I have pruned around it so that it can get a bit of sunshine and air flow ๐
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My poor husband has been fasting for a blood test, and just sat waiting for an hour in the waiting room only to be told he has been fasting for too long ๐ญ That would have been helpful information for someone to have given him with the pathology form?? ๐ญ
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#3GoodThings today. 1. I got to pat a very good doggo ๐ 2. Maybe a little progress with one of the kids' medical issues ๐ค๐ป 3. Rest of the family enjoyed watching most of The Fellowship of the Ring, while I enjoyed having some alone time ๐ง๐ป
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#3GoodThings today. 1. My household menfolk had a good time playing cricket at the park, which I'm sure was good for all of them, even if my poor husband is still exhausted ๐ 2. Only piffling little aches and pains today, no medical emergencies โ๏ธ 3. A comfy bed to rest in and plenty of things to watch while I rest ๐๏ธ
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#3GoodThings today. 1. Perfectly timed half price offers in the grocery app ๐ 2. Only having a large hill of laundry to do, rather than a small mountain ๐งบ 3. Having my comfy bed to lie in when I need rest ๐๏ธ
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Aus POTS fam, the Australian #POTS Foundation has a webinar coming up called "Living with POTS Community Q & A". If you sign up as a member (for free), you can get a 100% discount on the webinar tickets, so that's also free. And they're going to email recordings out after the webinar, so there's no stress about missing it if you're having a bad day. https://potsfoundation.org.au/ to become a member. Hopefully you would get an email about the webinar but if not, ma...
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#3GoodThings today. 1. Feeling pretty good! ๐ 2. My eldest also felt pretty good today - compression socks to the rescue ๐งฆ 3. Watched a fun movie I enjoyed ๐ฌ
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[Australian context] Sign the National Healthy Air Strategy - Centre for Safe Air https://safeair.org.au/national-healthy-air-strategy/ > Australia needs a National Healthy Air Strategy. Use this form to join the Prebudget Submission and Consensus Statement. You can sign as an individual, you don't need to have a professional interest.
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Huh. Just came across a profile that said "if you don't like unsolicited advice please block me" and I super appreciate that, but I still don't get it. They said they don't like seeing people have a problem that they could help with, but why not offer _solicited_ advice? "Hey, I have some relevant info/experience here, are you interested?" Why does it feel better to give it as both an unsolicited interaction, and as advice (as opposed to info/experience)?
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#3GoodThings today. 1. Finally making it to bed for the night ๐๏ธ 2. It's a long weekend for my husband this weekend ๐ 3. A 2 week break from lunchboxes and clean uniforms!! But sadly not from alarm clocks ๐ฑ
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Watching a bear mama and 2 cubs grazing on grass in the sunshine on the other side of the world, in real time. The internet still has good bits ๐ฅฐ
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#3GoodThings today. 1. Bedtime, at long last ๐๏ธ 2. Toothpaste tablets!! I discovered in hospital that I am no longer compatible with regular toothpaste: nasty, slimy, choking stuff ๐ชฅ 3. Watching videos of rats ๐
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#3GoodThings today. 1. Finally having clean hair after having to wait a while to be well enough to shower ๐ง๐ป 2. Ordered a Christmas present for my husband that I think he will be surprised and delighted by ๐ 3. Just enjoying the relative peacefulness of being at home ๐ก
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Oh yeah I just remembered another daft thing that happened in the hospital. I had to ask a couple of times if it was okay to take the painkillers I brought with me because my period was due. I got reactions like: but you're on menopause hormonal treatment?? Why are you still having periods?? Good fucking grief Australian HCW are bad at perimenopause ๐ฑ
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It was so bright that I couldn't see my phone screen properly so the photo isn't great, but my Australian Bluebell plant is looking incredible just now ๐ #BloomScrolling
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An interesting thing from the hospital experience: a lot more healthcare workers seem to be familiar with POTS now. It sometimes confused them more when I said the whole thing instead of abbreviating it ๐ Brace yourself for the irony though: I'd say they know more about POTS now than they do about covid ๐ซ Many baffled reactions to my respirator, had to explain a bunch of things to people who absolutely should know more about it than I do ๐
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#3GoodThings today. 1. Coming home from hospital, and crawling back into my bed-nest ๐๏ธ 2. Although it was far from utopian, I'm very grateful for the care that I did receive โ๏ธ 3. There isn't too big of a backlog of chores to catch up on ๐ฎโ๐จ
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Back home ๐ฎโ๐จ