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@PaulaToThePeople@climatejustice.social

2026-09-15 17:00 UTC

On Friday I'll get a 24 hour blood pressure monitoring and 48 hour ECG (or maybe both will turn out to be 72 hours, since I don't plan to go to the hospital on Saturday and Sunday). Then in November I'll have a cardiac stress test. There is no expectation that any of the tests will yield meaningful results, they are just needed to justify then having a tilt table test (I'm expecting months on a waiting list), which will lead to a diagnosis... of a symptom! There is no plan yet how that diagnosis of a symptom (orthostatic dysregulation) will then help with the diagnosis of the disease, but hey, I only have it for 3 years so far. Thanks to corona denialistm medical care for #mecfs, #PostCovid and other #PAIS is basically non-existant.

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