@PaulaToThePeople@climatejustice.social
2026-09-15 17:00 UTC
On Friday I'll get a 24 hour blood pressure monitoring and 48 hour ECG (or maybe both will turn out to be 72 hours, since I don't plan to go to the hospital on Saturday and Sunday).
Then in November I'll have a cardiac stress test.
There is no expectation that any of the tests will yield meaningful results, they are just needed to justify then having a tilt table test (I'm expecting months on a waiting list), which will lead to a diagnosis... of a symptom!
There is no plan yet how that diagnosis of a symptom (orthostatic dysregulation) will then help with the diagnosis of the disease, but hey, I only have it for 3 years so far.
Thanks to corona denialistm medical care for #mecfs, #PostCovid and other #PAIS is basically non-existant.
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